Reactions, Adaptation, and Support Needs of Siblings of Children with a Life-Limiting Disease: The Parents’ Experiences

Seven parents describe what siblings of a child with a rare fatal disease go through: early maturity, fear, sorrow, and support that remains fragmented.

A Qualitative Study of Men’s Experience of Being a Father in Families with Childhood Disability

Seven Norwegian fathers of a child with a disability describe their fathering, emotions they often keep silent and a care system that mainly addresses mothers.